Josi (O-Josi-O) (eris_devotee) wrote,
Josi (O-Josi-O)

I am so glad the days now get shorter. The sunlight has been getting to me, and not even having nighttime for a walkabout has sucked. The heat this week... well, today isn't so bad because it's cloudy. As long as it stays that way, the apartment doesn't get too bad.

My eyes feel a little better today. Hopefully the weandown can continue. It could be that I'm just experiencing extreme lid droop, except that my upper cheeks are so puffy I can see them. That doesn't make sense if I am going down on prednisone.

My wacky relationship with sleep continues and it makes cognitive functioning a challenge, not to mention I get really tired at odd times and can't seem to get regulated. I need a schedule, and one that does not include being wide awake at 4 am, but I keep passing out before 10pm no matter how hard I try to stay awake or whether or not I've napped.

I'd like to be napping right now but I've got the shakes. So I'm wearing my eyes out because then at least I feel the need to keep them closed for a while.

I'm slowly putting together a super-sale of my patterns, with an accompanying email campaign, in order to raise the funds for another year of hosting for both of my websites. I've made enough money through the course of the year to justify it, but at the moment those accounts are drained and I'd like them to pay for themselves in the immediate. August will be an expensive month, with the surgery and taxis and likely eating take out for a few days at a time.

Then the time between then and the second surgery will also likely be loaded with appointments... all the ones I am skipping now, plus follow-ups and then another round of pre-surgical consults... which I need every time because of lupus and Grave's and the complications I have. Besides that I have tachychardia and a prolapsed mitral valve, I have a history of pericarditis. My thyroid levels need to be normal, too, or they'll cancel surgery. This one isn't eyesight threatening, so I have to be in otherwise stable health. They don't expect "good" health from someone with lupus, but the heart stuff is always of concern.

Although I imagine I will tire of them quickly, Cliff bars aren't as bad as I remember and I can get one down and get 240 calories. Even if it takes me an hour to eat it, it's still probably the densest and most nutritious of the convenience food options I have. I think I can make a proximity of my own, that I'll like better, but for now the total convenience of food from a wrapper is sadly in order.
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